Rare Chromosome Disorder Support Group
Rare Chromosome Disorder Support Group
#05460413 • Active
B2cServices
Unique provides support, information, and networking to families affected by rare chromosome and gene disorders, helping them understand diagnoses and connect with others.
Founded: 23/05/2005
Industries: Activities of other membership organizations n.e.c.
Website: https://rarechromo.org
Phone: Subscribe to view
Email: Subscribe to view
Location: Oxted
Products
- Children's Booklets
- Easyread Guides
- Guides To Specific Chromosome Changes And Gene Variants
Services
- Fundraising And Volunteer Opportunities
- Resources For Professionals
- Support For Families Affected By Rare Chromosome And Gene Disorders
Financial Snapshot
Last accounts made up to 31 March 2024
Next accounts due 31 December 2025 (7 months)
Cash in Bank £0.32m
↑ 5%
Turnover £0.4m
↑ 37%
EBITDA £28,426
↑ -131%
Total Liabilities £14,009
↓ -24%
Employees 6
↓ -14%
Directors
Name | Role | Appointed ↓ | Nationality | Age |
|---|---|---|---|---|
| James Edward Lucas | Retired | 14/01/2025 | British | 59 years |
| Cecely Hugh | Solicitor | 16/12/2024 | British | 41 years |
| Shwetha Ramachandrappa | Consultant Clinical Geneticist | 11/10/2019 | Irish | 43 years |
| Benjamin James Stern | Banker | 14/08/2014 | British | 49 years |
| Helen Elizabeth Campbell | Compliance Manager | 17/06/2014 | British | 56 years |
| Fiona Catherine Fulton De Zoete | Charity Volunteer | 01/05/2013 | Australian | 77 years |
| Sophie Priscilla Sainty | Solicitor Non Practising | 19/11/2009 | British,french | 56 years |
| Edna Margaret Knight | Accounts Supervisor | 23/05/2005 | British | 81 years |
Role:
Retired
Appointed:
14/01/2025
Nationality:
British
Age:
59 years
Role:
Solicitor
Appointed:
16/12/2024
Nationality:
British
Age:
41 years
Role:
Consultant Clinical Geneticist
Appointed:
11/10/2019
Nationality:
Irish
Age:
43 years
Role:
Banker
Appointed:
14/08/2014
Nationality:
British
Age:
49 years
Role:
Compliance Manager
Appointed:
17/06/2014
Nationality:
British
Age:
56 years
Role:
Charity Volunteer
Appointed:
01/05/2013
Nationality:
Australian
Age:
77 years
Role:
Solicitor Non Practising
Appointed:
19/11/2009
Nationality:
British,french
Age:
56 years
Role:
Accounts Supervisor
Appointed:
23/05/2005
Nationality:
British
Age:
81 years
People with Significant Control
| Name | Nature of Control | Notified On | Nationality | |
|---|---|---|---|---|
| No active PSCs found | ||||
No active PSCs found
Financial Accounts
| Mar 2023 | Mar 2022 | Mar 2021 | |
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Charges
No charges registered
Properties
No property information available
Grants
No grant information available
Group Structure
No group structure information available
Government Council Contracts Beta
No council contracts found
Company Filings
| Date | Category | Description | Document |
|---|---|---|---|
| 16/01/2025 | Officers | Appoint Person Director Company With Name Date | View (2 pages) |
| 17/12/2024 | Officers | Appoint Person Director Company With Name Date | View (2 pages) |
| 21/11/2024 | Officers | Appoint Person Secretary Company With Name Date | View (2 pages) |
| 21/11/2024 | Officers | Termination Secretary Company With Name Termination Date | View (1 page) |
| 28/10/2024 | Accounts | Accounts With Accounts Type Total Exemption Full | View (34 pages) |
| 20/09/2024 | Officers | Termination Director Company With Name Termination Date | View (1 page) |
| 20/05/2024 | Confirmation Statement | Confirmation Statement With No Updates | View (3 pages) |